First, let me update on some other things. Mom and Allie took JW to San Antonio on Tuesday for another check up. He received botox injections in his limbs to help relax the muscles in his arms and legs. You could definitely tell a difference in his range of motion and just in how he was holding his arms and legs. A change for the better I would say. No other big news there. However, on their way home and while in line to get dinner in Uvalde, JW had another episode. Allie calmed him down, but then as they were pulling up to the window he had another. To give you a better picture of these episodes...it is like JW gets VERY upset about something and cannot calm down. We don't know if he is hurting, too hot, too cold, doesn't like the light, or the dark....we just don't know what sets him off. Regardless, it is near impossible to calm him down and then all of a sudden, out of nowhere, his heart rate plummets. This is often accompanied by a big drop in his oxygen levels as well. Most times he recovers from this on his own, only to do it again. Our worry is...what if there is one time he doesn't?!?! Also, we are concerned there is a link between his being so upset, these episodes and his not sleeping for almost 3 days.
Allie and mom took him straight to the ER in Uvalde and of course, he was fine the rest of the evening, so they took him home. The next day (Wednesday) he had small episodes off and on. I finally went over to offer any help I could, which isn't much since I don't know JW's routines, etc. Mainly I was there for moral support and in hopes my sister would get some rest. We were up ALL NIGHT. I got there at around 9pm and between then and 4am JW only slept a total of, maybe, 30 minutes. He also had at least 3 of these episodes. Through the first two, which happened close together around 1am, Allie called JW's doctor. He told her that if JW had another one, to go ahead and have the EMS take him to the hospital. The doctor wanted JW to be transported should anything go wrong, and so he could be on monitors where they could see the episodes and what was happening with his body at the time. Mom and Allie took him on to San Antonio the next morning after another sleepless night in the Uvalde ER. JW was stable all night, so they decided to forego EMS transport and take him themselves.
They made it 20 minutes out of Uvalde and he had another episode. Let me tell you that these episodes are nothing you can take lightly...they literally scare the living daylights out of you and you are there standing over JW hoping that he calms down and comes back from it. It is purely nerve wracking!!! They made it to the doctor's office and while in the office, JW had another episode. Thank goodness they were there for the medical staff to see it!! The doctor immediately had JW admitted to the hospital. They performed an EKG and a variety of other tests, which we are awaiting results on. Mom and Allie checked into a hotel and finally got a solid night of rest.
After staying up with Allie Wednesday night, I can tell you she has been living on pins and needles. She truly has had no rest all week until last night. JW requires around-the-clock care and monitoring. We are praying that the tests they ran yesterday will provide some answers or at least, insight as to why he hasn't been sleeping and what is causing these scary episodes.
We need your prayers during this time and on into the future as JW has a very long road ahead as do all of us with him. Please pray for his doctors, that God will give them wisdom and discernment to seek out what is wrong and provide JW with the best medical care possible. Pray for Allie that God gives her the strength and endurance needed to run the race set before her. Also, that she will take care of herself (stay healthy mentally and physically) so she can care for JW as I know she desires to care for him. Pray for our family to know how the rest of us can help Allie and JW when they need us. We all also need prayer for our emotional stability and strength as things get very tense, very quickly. We need to stay strong and praise God in this storm! We also need God's comfort and to feel his love surround us. Pray that God will allow us to see, even a glimpse, of his purpose for JW and all that JW is going through. Also, remember Wacy while he is at the Border Patrol Academy and Mitchell and Tristin who are coping with all the changes at home and trying to understand what is happening around them. I thank all of you for your prayers, we have felt them. Thank you for your love, support, and encouragement. I pray that God blesses you immensely. I will update as soon as I receive any new information.
May the blessings of the Lord be with you today and always,
Lindy
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