So sorry, it has been a long, long time since I last updated, I am a terrible blogger, Lindy is definitely better at it than I am.
JW had a hospital visit in May when he was admitted for pneumonia and was on a high flow oxygen for a week. We haven't been back since, except for follow up appointments.
JW has scoliosis, which he will most likely need surgery. We will find out about that in August, if he will be able to handle the extensive surgery and replacements every six months.
We also have two nurses now, instead of just one, to cover 7 days a week, 10 hours a day. They are wonderful and work very well with JW.
He is now 10 months old and improving a little each day, he even giggles a little, it's the cutest thing.
Thank you for your thoughts and prayers, God is listening.