On September 16, 2008, our lives were forever changed when James Wilson (J.W.) entered the world. He is a living miracle who has touched our hearts and revealed to us the greatness of God. This is his amazing story.

Thursday, March 19, 2009

Finally...a photo!!!

I know this is what you all have been waiting for.......

James Wilson Taylor

6 months and 2 days old.

Yesterday we had follow up appointments with the gastro interologist, the g-tube surgeon and a follow up from the last hospital visit.

All appointments went well, his biliruben level is getting better, his g-tube site looks wonderful and his lungs sound clear. All good things for this little guy!!

We are gaining weight and starting to move more...God's miracle at work!

I will try to write more later, my brain isn't awake yet, but at least you can see the growing boy!


Tuesday, March 17, 2009

Happy, happy 6 month birthday James!

So yesterday was little JW's 6 month birthday! Ahh (a sigh of relief), we have made it this far! Half of the first year down, the other half to go. We have been home just almost exactly two weeks from our last stint in the hospital, yeah, and doing really well. Tomorrow we have a doctor appointment and hopefully all is well with his little lungs. Last I looked, JW weighed 10lbs, 4oz. 
Thanks to all of you who have kept us in your thoughts and prayers, we appreciate everything that everyone has done for us. Keep up the prayers!! They are working!

More to come soon, I will update after our appointment.

Praise God for His miracles, including JW!

Saturday, March 7, 2009

Home Again, Home Again

Good news!  JW is home from the hospital and doing well.  We are ecstatic that his trip didn't last too long!  I think it was more of a precaution than anything.  He also started to move his left arm more, including his fingers!!!!  This is huge for him.  Hopefully more improvements in his movement will begin to surface as well.  His lack of muscle tone is one of the possible reasons for his respiratory issues.  So, the more he moves and gains muscle strength the better he will continue to do.  Also, someone from ECI came yesterday and worked with him doing therapy.  The person (sorry, can't remember if Allie said it was a man or woman) even sat JW up and Allie said he loved it.  He liked being able to look around...wouldn't you after being in a bed for almost 6 months?  We are still waiting for more answers on JW's hips.  He goes to the doctor, I believe, next week for that appointment.  Please pray that the doctors will have some answers and a plan of attack as it is becoming more apparent that his hips are actually bothering him...and it makes sense why he can't move his legs with his hips dislocated, don't you think?  Hopefully we will have more insight into this issue and what the doctors are planning to do about it.  Please keep those prayers coming...they are working miracles!


Tuesday, March 3, 2009

Late Night Update

JW had been running a periodic fever (very low-grade) for a couple of days, so yesterday afternoon Allie and the nurse on-duty took him over to Uvalde for some chest x-rays to see if the pneumonia was back.  The x-rays looked a little fuzzier (meaning fluid/congestion in the lungs) than usual so the decision was made to take him on to San Antonio as a precaution.  It looks as though the pneumonia was starting up again. :(

I got this news at around 8pm last night on my way home and this was the last I heard.  I should be getting an update sometime this morning and will post more news as soon as I can.

Please be praying for JW...physical strength to overcome this illness for good, wisdom for the doctors to find the root cause of his respiratory issues (he seems to be making headway in all other areas much faster than with his respiratory problems), and for Allie, Mom, the nurse, and the rest of us to do the best we can with what we are dealt and to hold fast to our hope and our sanity.  Thank you for all you do and for all the sweet comments I have gotten in person, via email, etc.  I am glad to know you are reading this and praying for JW!