Tomorrow we have a big day ahead of us. We will be doing a second car seat study to try to get the growing boy into a regular car seat. He is currently in what is called a car bed, just a flat car seat that rides sideways in the vehicle. Please pray that the Lord will give JW the strength to be in the regular car seat, otherwise, it will be an ambulance ride anytime we have to go anywhere. He will have to prove to the doctors that he can handle being at the 45 degree angle for 1 1/2 hours(the time it takes to get to S.A. from Uvalde).
We also have an appointment at the feeding clinic, which will once again assess his ability to handle his extra secretions and swallow. We are praying hard for this one also!
The last two weeks, he has been doing awesome!! Not having to suction as often.
We also see the neurologist for his botox treatment tomorrow, I have very mixed feelings about this procedure. It has done wonders for his tight muscle tone, but we still aren't sure if it caused his respiratory problems shortly after the last injections. I pray God will give me the wisdom to decide what to do in the best interest of JW.
Well, as most of you know, WE HAVE MOVED! Finally, it was a chore getting JW moved. Compared to his stuff, the rest of the house was a breeze. The problem with his stuff, is that you had to know exactly where everything was, but with the help of my mom and dad and our nurse, Albert, we got it done.
We are happily settling into our beautiful home God has blessed us with.
Tristin has adjusted to changing schools near the end of the year very well. She loves it. I am so glad things went smoothly with that.
I am adjusting to being a full time mom at home! Ahhhh! Just kidding, I actually have more time to keep the house clean, wash clothes, all of that good stuff that we love doing. Not to mention more time to spend with the kids.
Occassionally, I have to call my adopted sister Leigh, or make a trip to Brackett to chat it up. I don't get very much socializing in Uvalde yet.
Anyhow, we love where we are at and love being a family again.
Thanks to my parents and my sis Lindy to all they have done to help us during the most hectic time in our lives. love you guys!
Here are some cute pics of JW, now 7 months old!! oh! I almost forgot, We have been home now for ..... I am starting to lose track it has been so long... I think 7 weeks going on 8. Hooray! Praise the Lord.
Thank you for your prayers for our little boy, they are certainly working on this little miracle. We see improvements every day as he grows stronger with love and strength God and his family gives to him.