tag:blogger.com,1999:blog-3162389648486367382024-03-13T01:48:22.676-07:00James Wilson Taylor...our family's little miracle"Before I formed you in the womb I knew you, before you were born I set you apart..." Jeremiah 1:5Allison Taylorhttp://www.blogger.com/profile/02072497898940535120noreply@blogger.comBlogger60125tag:blogger.com,1999:blog-316238964848636738.post-53811895194685440122012-09-14T12:31:00.001-07:002012-09-14T12:49:56.743-07:00A heart full of emotions<div style="text-align: left;">
I have been rather reserved in my social life after James went to be with the Lord nine months ago. We have been growing and finding our way in this "new" life as a family. We recently relocated. We wanted a fresh start. Not so much to run away from the past but have positive change for the future. </div>
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From reading this blog previously, you know that James has two siblings. Tristin, 9 and Mitchell, 5. Our life was so chaotic since September 16, 2008 that we wanted a shift; a more relaxed life with time to focus on the children who were unavoidably neglected in many ways. I think we have found that. Great school, good people and less hustle and bustle (no Walmart down the street).</div>
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I am hoping, with the time I have now, to grow as a Christian woman, a mother and a wife. </div>
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There were many things that were set aside when it came to caring for James which was ALL of the time. But I tell you, the second I no longer had that blessing I felt empty. </div>
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James far exceeded the medical professionals' expectations. I always had a feeling that things would be ok but mostly doubted that feeling with, is THIS "THE TIME". Losing James was the hardest thing I have and probably will ever do. I worked so hard to keep this precious baby boy alive and didn't want to give up. God gives you the grace to let go when you humanly can't. </div>
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James' birthday is on Sunday. I haven't decided what to do yet. I want the kids to be involved in something special to thank God for the day James came into our lives. I'll be praying for the perfect thing to remember what a special blessing he was to us and everyone who knew him. I encourage anyone to write a special memory you have of James, I would love to read them. </div>
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I am eternally thankful for everyone who supported, prayed, thought, cried and laughed with us as we went through this journey. The journey isn't over. I am hopeful to help other parents going through a similar situation and to be an advocate in the name of James Wilson Taylor for children who can't speak for themselves.</div>
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Please pray for our family as we continue in finding a new groove that fits our family like James did.</div>
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Allison Taylorhttp://www.blogger.com/profile/02072497898940535120noreply@blogger.com5tag:blogger.com,1999:blog-316238964848636738.post-44718269184989140752011-12-25T18:51:00.001-08:002011-12-25T18:51:45.058-08:00Merry Christmas, LoveI'm sure everyone knows by now. JW passed away on December 10th. He had gotten sick a week before and was not getting any better. He had pneumonia but was not strong enough to overcome it. I'm thankful for every day of his beautiful life. He showed me so much in 3 years, I learned to be patient, giving and much more. He not only touched my life but countless lives. I always knew he was not my child but God's. I know he is not suffering in this cruel world anymore. He's sitting in the lap of his Nana Sylvia as she rocks him and sings quietly in his ear. <br />
I knew this day was coming but no one can be fully prepared for the reality of that day. I love you so much my Love. I'll be waiting to see you again. Merry Christmas!<br />
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Thank you everyone for your thoughts and prayers over the last few weeks and the last 3 years. We have some large adjustments to make in the future but are accepting and understanding of God's plan and know there is a purpose. <br />
Thank you Lord for my Angel! Allison Taylorhttp://www.blogger.com/profile/02072497898940535120noreply@blogger.com1tag:blogger.com,1999:blog-316238964848636738.post-73610777712309340852011-09-20T20:58:00.001-07:002011-09-20T21:00:14.766-07:00Update coming soon!A lot has happened in 2011. Things are settling down so expect an update in the very near future.<div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjuYd_kEwzacKGrYQGHTb8LOBD09QbzrZ1NoNUVvkory5otZdjzyT48vSFb1xF87frCAN9Fj_Rav2vrOomqtX1T2XPOl4ztrL9v78sxTl-oQ6OUXohTu8B16l4sK0yPUkuKuRU6i0vbxMuZ/s640/blogger-image--611650175.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjuYd_kEwzacKGrYQGHTb8LOBD09QbzrZ1NoNUVvkory5otZdjzyT48vSFb1xF87frCAN9Fj_Rav2vrOomqtX1T2XPOl4ztrL9v78sxTl-oQ6OUXohTu8B16l4sK0yPUkuKuRU6i0vbxMuZ/s640/blogger-image--611650175.jpg" /></a></div>Allison Taylorhttp://www.blogger.com/profile/02072497898940535120noreply@blogger.com0tag:blogger.com,1999:blog-316238964848636738.post-85471143290016692582011-01-07T06:25:00.000-08:002011-01-07T06:41:08.433-08:00Brief stay<div>As previously mentioned, JW had a couple of overnighters in the hospital prior to Thanksgiving and after his August birthday celebration. My sister and the nurses have gotten really good at detecting the slightest change in JW's condition. Specifically, they know the instant he may be coming down with an illness or infection. They have learned that it is best to just take him straight to the children's hospital for observation and to get him started on medication, if needed. This was precisely the case in the last two instances where he went to the hospital. Both times, he was started on medication and was released 24-48 hours later. Once, he didn't even have to have an IV! I went with my sister on one of the days he was released. It was quite the eye-opening experience. I couldn't believe how much she has to remember to check on, ask the the nurses, and remember to pack up to take him home. This kid doesn't travel lightly. She has to unplug him from all the hospital monitors and put him on his portable ones. She has to detach the hospital's oxygen supply and hook him up to the portable oxygen tank...and then the home oxygen concentrator once they get home. Then there's his feeding tube and bag of formula. She has to remember to get all of his medications and the schedule for them that he was on at the hospital...because they somehow always change it when he gets to the hospital. Then there's any new medications they put him on to clear the infection (antibiotics). She also has to get all the regular stuff too...clothes, diapers, blankets, stroller, and so on. It is really astonishing. I was present along with mom and niece, T to assist and take pictures, of course. Here are some shots from what was an adventure for me and normal life for my sister...</div><div><br /></div><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg4_Ia0FsLHi2fT5pk1EMu6Uzu9ypOEn-7bCvIM8LGw95_HkvzcAuVlFFpkZCRpRrhThbs31mAGuCq_Je4xxzI2DOE-G6KNVfGninyZsNYZw5ZhJPnhixYPbgnWG1CN09G9Xe5LvNbcaJUR/s1600/SL386021.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 240px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg4_Ia0FsLHi2fT5pk1EMu6Uzu9ypOEn-7bCvIM8LGw95_HkvzcAuVlFFpkZCRpRrhThbs31mAGuCq_Je4xxzI2DOE-G6KNVfGninyZsNYZw5ZhJPnhixYPbgnWG1CN09G9Xe5LvNbcaJUR/s320/SL386021.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5559453474304103186" /></a><div style="text-align: center;">JW, laughing at his sister being silly</div><div style="text-align: center;"><br /></div><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiP03Afs6JucXP2z5uC_gyoeC0-80A0HJ0kbGLzi9u_2whVF5i_q84JKDqwdCbbZsicnrbIR282bmy_nd6zLf98sPFL7_rggS6keJvbsl0PzlQB1_qd-ng2hH0_dspWyM4aY956RHLR9FbW/s1600/SL386035.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 240px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiP03Afs6JucXP2z5uC_gyoeC0-80A0HJ0kbGLzi9u_2whVF5i_q84JKDqwdCbbZsicnrbIR282bmy_nd6zLf98sPFL7_rggS6keJvbsl0PzlQB1_qd-ng2hH0_dspWyM4aY956RHLR9FbW/s320/SL386035.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5559453269022028130" /></a><div style="text-align: center;">Happy boy</div><div style="text-align: center;"><br /></div><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhq7uz7ZQ9O3GfQgLhFmx7i1adxs1005MU-fGuwluZ16gdtR8MFIsMlLrLA2AkHqzXvLwu2EvfotiOIXpYdNF685n7qhDlYkkQ4s_BE9sSzilRel5TJXs2rDZkeVrT0IvWaVmjD1A6pSKwY/s1600/SL386037.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 240px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhq7uz7ZQ9O3GfQgLhFmx7i1adxs1005MU-fGuwluZ16gdtR8MFIsMlLrLA2AkHqzXvLwu2EvfotiOIXpYdNF685n7qhDlYkkQ4s_BE9sSzilRel5TJXs2rDZkeVrT0IvWaVmjD1A6pSKwY/s320/SL386037.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5559453260850043906" /></a><div style="text-align: center;">So precious...thank you Lord for that smile!</div><div><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj4yYo0rNe2eFdtYr-gEi9J8bO3lQ9gH5SKkW15sFhqScBDR3w7F144DAvyJwvKoVLlxv-6_MKzcUu48MW2Kfn91sFQ6uvZQmE3Zx84Dy76fbQ9Ka-QBbVVYOamgohUr0KkJul9934uaSgs/s1600/SL386045.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 240px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj4yYo0rNe2eFdtYr-gEi9J8bO3lQ9gH5SKkW15sFhqScBDR3w7F144DAvyJwvKoVLlxv-6_MKzcUu48MW2Kfn91sFQ6uvZQmE3Zx84Dy76fbQ9Ka-QBbVVYOamgohUr0KkJul9934uaSgs/s320/SL386045.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5559453257732229954" /></a><div style="text-align: center;">Loves his sister's antics</div></div><div><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjIdIBq2Ul3UUoaWlAjsKWu-SRQWPEiEjQ4UES_bunoOln6YDc_tvtjbp7FM1tH_hAGq3ie6mnXDM680Rn2GgcG3aX16UMdPN-1shpNNdMe2oCVwSzo_NqZC7kn19gjw1U4Nti8KvlUAYkL/s1600/SL386048.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 240px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjIdIBq2Ul3UUoaWlAjsKWu-SRQWPEiEjQ4UES_bunoOln6YDc_tvtjbp7FM1tH_hAGq3ie6mnXDM680Rn2GgcG3aX16UMdPN-1shpNNdMe2oCVwSzo_NqZC7kn19gjw1U4Nti8KvlUAYkL/s320/SL386048.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5559453253365319330" /></a><div style="text-align: center;">Allie packing up</div><div style="text-align: center;"><br /></div><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgz30Ky6KmwmC3g-8OOWxyKpcfJZZeOc_LbwzTVR2UGBtvpPNyiuNaUNXLeYrCpHnqEOYO3ZpYyqYIjbTaum88t-NSmybAidu8ObuWNcgO5cc2nyBFHVl1XUIFHA1vzWpEJiL9Q5LfQfSyJ/s1600/SL386050.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 240px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgz30Ky6KmwmC3g-8OOWxyKpcfJZZeOc_LbwzTVR2UGBtvpPNyiuNaUNXLeYrCpHnqEOYO3ZpYyqYIjbTaum88t-NSmybAidu8ObuWNcgO5cc2nyBFHVl1XUIFHA1vzWpEJiL9Q5LfQfSyJ/s320/SL386050.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5559453251144144226" /></a><div style="text-align: center;">Let's go home! :)</div><br /></div>Lindyhttp://www.blogger.com/profile/02758341190005342004noreply@blogger.com0tag:blogger.com,1999:blog-316238964848636738.post-81314147470610670542011-01-07T06:08:00.001-08:002011-01-07T06:23:15.545-08:002nd Birthday!<div>This post is way overdue! I have been so far behind in blogging, altogether. In the last post about James, he had been in the hospital and some big decisions were made about his long-term care. Well, praise be to God...He <i>was</i> willing and since then, JW has been doing so well!! I know my sister and her family are especially thankful for this reprieve from the all-too-frequent trips to the children's hospital and Air Life flights. Not only did we have his early birthday celebration in August, but we celebrated his real birthday in September and now Christmas! We are certainly hoping 2011 will be better all-around and so far things are certainly looking hopeful for that to be the case. He has had two very minor trips to the hospital since August...not by ambulance though and was out within a couple of days. Once, he didn't even have to have an IV!! Since then things have been going very well. Here are some photos from his August birthday celebration. A big thank you to all who were in attendance and for all of you who keep him covered in prayer. God has heard you and has been so incredibly faithful!</div><div><br /></div><div>~Aunt Lindy</div><div><br /></div><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiP6knIUrDo_vU55NBNXBlGWhBBF8_9pgD2DDIjUjkQtar6ktLxrLMHr3tlmuO-xgwd5nd_sHATO-_2OzLNw-31hjIzuoER6hNqK2h0XBRcfmeAg3c-AwCMwalP-NRVt074RfP86v3SYPFU/s1600/IMG_6215.jpg"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 213px; height: 320px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiP6knIUrDo_vU55NBNXBlGWhBBF8_9pgD2DDIjUjkQtar6ktLxrLMHr3tlmuO-xgwd5nd_sHATO-_2OzLNw-31hjIzuoER6hNqK2h0XBRcfmeAg3c-AwCMwalP-NRVt074RfP86v3SYPFU/s320/IMG_6215.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5559448635693242930" /></a><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEghxbMMc0R5M6YWqQ-eLQqNloZEk9-R3ItgN3JqfFgVbD_y5jKOuwPcXVVRlpff8c9xz_iJdDATamxZK2Nt1W2y9bfaJ_PxFXupkQCQm0WTfhf_EueaX2FEru6boP4HcaBdbSlZN4pZfTwi/s1600/IMG_6235.jpg"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 213px; height: 320px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEghxbMMc0R5M6YWqQ-eLQqNloZEk9-R3ItgN3JqfFgVbD_y5jKOuwPcXVVRlpff8c9xz_iJdDATamxZK2Nt1W2y9bfaJ_PxFXupkQCQm0WTfhf_EueaX2FEru6boP4HcaBdbSlZN4pZfTwi/s320/IMG_6235.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5559448166712844946" /></a><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEipUOR0azv5ld8doJ1f-lHfa6UMTg7PE2aYuNU-evXSfVS9HFHIgkws1MXZ3cP_fnHJctzENK2OnVXcXYZSAfvJDFLf5W_8BS-eBFo41gLWp5i1uIEbnysunAseBdDInWaosxBltbkOKWoA/s1600/IMG_6237.jpg"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 213px; height: 320px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEipUOR0azv5ld8doJ1f-lHfa6UMTg7PE2aYuNU-evXSfVS9HFHIgkws1MXZ3cP_fnHJctzENK2OnVXcXYZSAfvJDFLf5W_8BS-eBFo41gLWp5i1uIEbnysunAseBdDInWaosxBltbkOKWoA/s320/IMG_6237.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5559448162742243506" /></a><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh92Ovv0oE4vTp-MxWb_cVg_t2em3cLA2vEPQaDmhSIznwBasYtK5XCwWYY3I0co7p9c0SfAB2qKKcJrMij91PdKquLCKQrCgqtZPsxVloKI-2b8-lclhLFD4P9w1gXbbBuu-aVsM8JgK1i/s1600/IMG_6216.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 213px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh92Ovv0oE4vTp-MxWb_cVg_t2em3cLA2vEPQaDmhSIznwBasYtK5XCwWYY3I0co7p9c0SfAB2qKKcJrMij91PdKquLCKQrCgqtZPsxVloKI-2b8-lclhLFD4P9w1gXbbBuu-aVsM8JgK1i/s320/IMG_6216.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5559448165855302210" /></a><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjlSzv85bzXmmRfFvLElbsVaY3_sf1CPVQ78MTff8jP3bPFQGfMNoOJDe4_iJ3mbbC-cPP7Rl2XhU4-Ff8ozu-ynSpiEE-9GvD-nlwI-lcOdasZ7nMu_gyooX-EBGBvNV_YhYLCPLJWnTls/s1600/IMG_6220.jpg"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 213px; height: 320px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjlSzv85bzXmmRfFvLElbsVaY3_sf1CPVQ78MTff8jP3bPFQGfMNoOJDe4_iJ3mbbC-cPP7Rl2XhU4-Ff8ozu-ynSpiEE-9GvD-nlwI-lcOdasZ7nMu_gyooX-EBGBvNV_YhYLCPLJWnTls/s320/IMG_6220.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5559448160793564466" /></a><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEirt4lKcTrUmk56K4a6hBJDdVEMNgpYHkIdLuDpwV9Qaa9D0OYTowF83ZbcIroZgqfiCTDcA1O3dFjJAcJv1Qa4-6tFWVU6iKxfCIC-rKgQi5CaFsSY9HcW_a_moBjBBF-MvLKKJIn4zLgD/s1600/IMG_6226.jpg"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 213px; height: 320px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEirt4lKcTrUmk56K4a6hBJDdVEMNgpYHkIdLuDpwV9Qaa9D0OYTowF83ZbcIroZgqfiCTDcA1O3dFjJAcJv1Qa4-6tFWVU6iKxfCIC-rKgQi5CaFsSY9HcW_a_moBjBBF-MvLKKJIn4zLgD/s320/IMG_6226.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5559448155494313666" /></a><br /><br /><div><br /></div><div><br /></div>Lindyhttp://www.blogger.com/profile/02758341190005342004noreply@blogger.com0tag:blogger.com,1999:blog-316238964848636738.post-46670184624628104662010-08-09T20:07:00.001-07:002010-08-09T21:44:01.219-07:00Disaster Averted!<div>The story of our life!!! HOSPITALS. I think after everything settles down, I will hate hospitals. I don't like them already, at least, I don't like being in them. I appreciate them and the wonderful, yet sometimes not so wonderful, doctors because they have saved my son's life over and over and over..... again. </div><br /><div>We left the hospital again on Wednesday night, because they can't ever seem to have the paper work done by the time I arrive. I even take my time because I know they will take their sweet time and I don't really have any reason to be there early. So anyway, we got <span class="blsp-spelling-error" id="SPELLING_ERROR_0">JW</span> home on Wednesday night. He did great Thursday and Friday and then on Saturday he started having one of his choking spells, where he cannot exchange any air in or out of his lungs. He basically chokes on his secretions. So, Saturday we ended up racking up some more miles on the <span class="blsp-spelling-error" id="SPELLING_ERROR_1">AirLife</span> helicopter. This time was different.</div><br /><div>So we have been faced with these 'difficult' decisions about which I promised I would elaborate on at a further date in time. Well, I guess, now is the time. </div><br /><div>In talking with the doctors after <span class="blsp-spelling-error" id="SPELLING_ERROR_2">JW</span> had been in the hospital every single month since November 2009, we came to the conclusion, we had to do something different, something else other than what we were doing because it obviously was not working. </div><br /><div>We had a couple of options: #1 put a <span class="blsp-spelling-error" id="SPELLING_ERROR_3">trach</span> (<a href="http://en.wikipedia.org/wiki/Tracheotomy">tracheotomy</a>) in to help him have a clear-er airway to breath and possibly prevent some of the hospitalizations. #2 Do not put a <span class="blsp-spelling-error" id="SPELLING_ERROR_4">trach</span> in and walk in a slightly different way than we have been. So, we looked at all of the options, we talked with doctors, <span class="blsp-spelling-error" id="SPELLING_ERROR_5">A LOT</span> of doctors, and came to a conclusion. <span class="blsp-spelling-error" id="SPELLING_ERROR_6">JW</span> has severe scoliosis, not only is his spine curved in more than one direction, his rib cage has shifted, or rotated so pressure is being put on his left lung causing it to barely be able to function, if at all. Because of the severity of this, there is no way, surgically or otherwise to fix it. It will only get worse. He basically works hard for every breath he takes. Breathing takes a lot of calories and energy for him to do, so there is not a lot of extra energy to help him grow. We have seen a slow or almost halt in his growth due to that reason. Also with all of the horrific events we have encountered over the last 9 months, he has had more injury to his brain. With each illness that may cause lack of oxygen, his brain gets injured also. There is definitely more to the story, but that basically sums it up. We don't see a long term benefit to the <span class="blsp-spelling-error" id="SPELLING_ERROR_7">trach</span> besides being on a ventilator that breathes for him, but that is not what I feel led to do for my son. We have elected to not <span class="blsp-spelling-error" id="SPELLING_ERROR_8">intubate</span> in the event of an emergency so his life will most likely be shortened by avoiding the traumatic events that his poor weak body would otherwise incur. I have prayed and prayed over this decision and I feel this is the direction in which God is leading me. I am at peace within myself with this decision and believe it to be the right one for <span class="blsp-spelling-error" id="SPELLING_ERROR_9">JW</span> and our family. I also feel that whatever happens is God's will and is His hands. Now having discussed the hard decisions we have made, on to this emergency on Saturday. I praise the Lord and thank him so much and everyone who has been praying for <span class="blsp-spelling-error" id="SPELLING_ERROR_10">JW</span>. I sent <span class="blsp-spelling-error" id="SPELLING_ERROR_11">JW</span> on the helicopter with a paper that says "do not resuscitate" along with some other fine print. I did not know what was going to happen but the Lord was with me and him as I sent him with the EMS team. We got a phone call that he made it to the hospital and was doing <span class="blsp-spelling-error" id="SPELLING_ERROR_12">ok</span>. I was not allowed to fly with him this time. We arrived and to my surprise, he was doing great! The little guy made it through, I was amazed and thankful because normally he would have been put on a ventilator almost immediately. Now we are a few days in to this hospital stay and he is doing wonderfully, weaning down off of the oxygen to his normal regimen. Hopefully, he will be coming home soon! AMEN!! My grandmother never liked the name James, I don't think I have ever blogged on his name, but after he was born and taken to Santa Rosa's <span class="blsp-spelling-error" id="SPELLING_ERROR_13">NICU</span> in San Antonio, we were filling out his paper work for birth certificate and such and <span class="blsp-spelling-error" id="SPELLING_ERROR_14">Wacy</span> was coming up with names that I DID NOT want for sure. He finally came up with something that I was agreeable to and at that point I was in so much pain and just wanted to sleep, I didn't really care what we named him, but I am glad we named him what we did. So back to my grandmother, my Nana, she has I said before, doesn't really like his name but not much she could do about it but call him whatever she wanted. She says that we ought to call him Will, because he has such a strong will. I agree with her on the strong will part but I am kinda partial to <span class="blsp-spelling-error" id="SPELLING_ERROR_15">JW</span> now. </div><br /><div>Last but not least: Because of the recent changes to his plan of care, I am planning a birthday celebration on August 21st. We are celebrating the wonderful gift God has given to me and our family, since we don't know what He has in store for our future, we are hosting this party a little bit earlier than his birthday which is on Sept. 16., one day after the best girlfriend in the world's birthday. We won't discuss that one, it's a BIG one. </div><br /><div>I would love for anyone to come and celebrate with us on</div><br /><div>August 21, 2010 at 3pm at our house in <span class="blsp-spelling-error" id="SPELLING_ERROR_16">Uvalde.<br /></span></div><br /><div>I ask that you PLEASE do not come if you or your children are sick. Sorry but we are extremely <span class="blsp-spelling-error" id="SPELLING_ERROR_17">germaphobic</span>, considering. Email me for further details at <a href="mailto:allie_78@hotmail.com">allie_78@hotmail.com</a>.</div><br /><div>Lord willing, we will be having a celebration for this beautiful baby:</div><div> </div><p align="center"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjqgCtz0hpspkaBzVNi_3E24J7vvKGrwXcc0jhX6aWIz63_GP2gcWe5qqvFiAxv25lAv7sMgQiSZDLuk3zRJEE60wtWTpDqnq2dofD_8sLYBCPA-MdlkO1lNHP69STumCibk-miWNh5i9CV/s1600/DSCN0682.JPG"><img id="BLOGGER_PHOTO_ID_5503626316319739714" style="width: 398px; height: 304px;" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjqgCtz0hpspkaBzVNi_3E24J7vvKGrwXcc0jhX6aWIz63_GP2gcWe5qqvFiAxv25lAv7sMgQiSZDLuk3zRJEE60wtWTpDqnq2dofD_8sLYBCPA-MdlkO1lNHP69STumCibk-miWNh5i9CV/s320/DSCN0682.JPG" border="0" /></a></p><div> </div>Allison Taylorhttp://www.blogger.com/profile/02072497898940535120noreply@blogger.com3tag:blogger.com,1999:blog-316238964848636738.post-18395471606766984812010-08-04T17:39:00.002-07:002010-08-04T18:39:03.864-07:00As I Type...Right this moment, Allie and nurse Chris are waiting at the hospital to bring JW home!! Thank you to everyone who continues to be so faithful in lifting up our little man to the Lord for healing. Allie and Wacy still may be facing some big decisions regarding his care in the coming weeks, so please, please, please be praying for them. They need discernment, guidance, and absolute clarity from the Lord. They also need peace to rest assured the decision(s) they make are in line with God's will. Also, a big thank you to everyone who sent emails, posted FB messages, and left comments on the blog. Your kind and encouraging words mean so much! We are so thankful to have each of you in our lives and even more thankful that you are praying for JW and the family. We love you all and are so grateful for the love you return to us! And now for the bonus...I snapped a few cute smiley photos of JW from my early summer trip to TX and thought it was about time for me to share them!<br /><br />-JW's Aunt Lindy<br /><br /><div style="text-align: center;"><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjwVJ7gjr6LDkzAjVEueuc0Ox9Ur_GRZVSM1dK8mPQNmhfOOsMSium4dsT8sn3wpiHYIwmoWPuJJDae7acgh7DTT_GO4umZUgcRu3EXqiVP8qf6pLeDtHcnmTcnA_QtiwIPo4M4vWhD7yS5/s1600/SL385625.JPG"><img style="display: block; margin: 0px auto 10px; text-align: center; cursor: pointer; width: 320px; height: 240px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjwVJ7gjr6LDkzAjVEueuc0Ox9Ur_GRZVSM1dK8mPQNmhfOOsMSium4dsT8sn3wpiHYIwmoWPuJJDae7acgh7DTT_GO4umZUgcRu3EXqiVP8qf6pLeDtHcnmTcnA_QtiwIPo4M4vWhD7yS5/s320/SL385625.JPG" alt="" id="BLOGGER_PHOTO_ID_5501733599603568690" border="0" /></a>He loves his toy!<br /><br /><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjEqlQIcIBUW4WlOKXBh_HnqtlTbPMBbP0PVHSz9O6Pbm9CPkstVM0qbkbxt4WaiuY2ytn1BuRjYz5UXCTmAQWfbeEr0Eop2ZcHpkHumTCVVAsDDROiKBqAZOzJ18G7Spt8cFaE_50yFIqY/s1600/SL385619.JPG"><img style="display: block; margin: 0px auto 10px; text-align: center; cursor: pointer; width: 240px; height: 320px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjEqlQIcIBUW4WlOKXBh_HnqtlTbPMBbP0PVHSz9O6Pbm9CPkstVM0qbkbxt4WaiuY2ytn1BuRjYz5UXCTmAQWfbeEr0Eop2ZcHpkHumTCVVAsDDROiKBqAZOzJ18G7Spt8cFaE_50yFIqY/s320/SL385619.JPG" alt="" id="BLOGGER_PHOTO_ID_5501733610836032434" border="0" /></a><br />Watching Chris blow a bubble<br /></div>Lindyhttp://www.blogger.com/profile/02758341190005342004noreply@blogger.com1tag:blogger.com,1999:blog-316238964848636738.post-1222588405999352452010-07-29T17:13:00.000-07:002010-08-01T20:34:50.862-07:00Wow, March, April, May, June and July, plenty of hospital time for this cute little boy. Thank you to everyone who has kept him in their thought and prayers, we all needed a little lifting up to the Lord.<br /><br /><br /><br />So, JW, aka, the cutest little boy ever, is currently in the hospital again!!, as many of you may know. He has had trouble with his respiratory system since November, whether it be a mucus plug or just a small cold, he has been through the ringer, poked and proded over and over again. But he still remains his happy little self, just smiling and giggling at all who love him and are around him. I think he has been the only one since September 16, 2008 that has kept on smiling and kept everyone else smiling. I am posting a picture of him taken Wednesday and I just ask for your continued thoughts and prayers as we are having to make some very difficult decisions over the next week concerning his care and managing his health in the way God has guided us to. We are at a fork in the road, where we will have to choose a little different plan of care for him because of his continued illnesses and extended stays in the ICU. Once we know more, I will post more detailed information on these issues, until then, I am just requesting some special prayers for guidance for my family and healing for JW.<br /><br /><br /><p align="center"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEirTYP-Yrtrtbce-Ew7DHa9xbpsnSMqpw5lpO7xPnoVUk1ZfTBt_6PSEJojh2ZyfEo0omKoZQD-6eeRkGUNGcfn7ILvx_a0NEsrJXUQO9nQmNX8wugCdofDxTpvfoGomrLFEfY6FaazrRNS/s1600/100_0550.JPG"><img id="BLOGGER_PHOTO_ID_5500647392204057570" style="WIDTH: 320px; CURSOR: hand; HEIGHT: 240px" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEirTYP-Yrtrtbce-Ew7DHa9xbpsnSMqpw5lpO7xPnoVUk1ZfTBt_6PSEJojh2ZyfEo0omKoZQD-6eeRkGUNGcfn7ILvx_a0NEsrJXUQO9nQmNX8wugCdofDxTpvfoGomrLFEfY6FaazrRNS/s320/100_0550.JPG" border="0" /></a></p>This was taken on Aug. 1st, he was laughing at Tristin, alot! She was dancing and singing to him and even read him a book. We wore him out by the time we left.<br /><br /><br /><p align="center"></p><br /><br /><br /><p align="center"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjKth3amiMbQs849giWet_wGcXaREbYZZ-FKy01qWztGBgxHNjuxhgqtZT4_4iOTbmaoNXqfkr6FLzN0LArifl9ZnjSdh3N68GjqrIZLtY0d3QNQP1Ou2z2A-g2P8454NFk5uVUkAgGpI5N/s1600/100_0559.JPG"><img id="BLOGGER_PHOTO_ID_5500648854643862290" style="WIDTH: 320px; CURSOR: hand; HEIGHT: 240px" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjKth3amiMbQs849giWet_wGcXaREbYZZ-FKy01qWztGBgxHNjuxhgqtZT4_4iOTbmaoNXqfkr6FLzN0LArifl9ZnjSdh3N68GjqrIZLtY0d3QNQP1Ou2z2A-g2P8454NFk5uVUkAgGpI5N/s320/100_0559.JPG" border="0" /></a></p><p align="center"></p><p align="center"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhtUiBA8bjN6BFnvnAnUTEn45gbACca6L5LRFRuhGJqV2RMK59vOLM5AL7w1xJBqBGNxsJmUbxPReDgoEXEziLeg2oeEgYhQFeyeKw_j4Cwhf3eQlUMiVUCaR8x8LUu8TamK7kjSvn3Xh1n/s1600/100_0558.JPG"><img id="BLOGGER_PHOTO_ID_5500649526651294770" style="WIDTH: 320px; CURSOR: hand; HEIGHT: 240px" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhtUiBA8bjN6BFnvnAnUTEn45gbACca6L5LRFRuhGJqV2RMK59vOLM5AL7w1xJBqBGNxsJmUbxPReDgoEXEziLeg2oeEgYhQFeyeKw_j4Cwhf3eQlUMiVUCaR8x8LUu8TamK7kjSvn3Xh1n/s320/100_0558.JPG" border="0" /></a></p><br /><br /><p align="center"></p>Allison Taylorhttp://www.blogger.com/profile/02072497898940535120noreply@blogger.com4tag:blogger.com,1999:blog-316238964848636738.post-25837954773922624462010-03-02T18:46:00.000-08:002010-03-02T19:15:42.267-08:00<div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEht414pIGdnsl1Z89CJEwMfLlYf4yr5y6Hs4KRCGt5de3IghpoRnGJkKNg79yq2UrX8W-eqhsG8L7HcJPRfqS6mGtwhHvTfFG_b4hGYMbgCggn-6Cl12xQ3lRMgLI130Tetm49lJA1Oj46P/s1600-h/3-1+james+2.jpg"><img id="BLOGGER_PHOTO_ID_5444239876595976642" style="FLOAT: left; MARGIN: 0px 10px 10px 0px; WIDTH: 320px; CURSOR: hand; HEIGHT: 240px" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEht414pIGdnsl1Z89CJEwMfLlYf4yr5y6Hs4KRCGt5de3IghpoRnGJkKNg79yq2UrX8W-eqhsG8L7HcJPRfqS6mGtwhHvTfFG_b4hGYMbgCggn-6Cl12xQ3lRMgLI130Tetm49lJA1Oj46P/s320/3-1+james+2.jpg" border="0" /></a> Hey guys! Wow, the last title on the blog continues to be true. We are going on four weeks in the hospital!! ahhh. Nothing serious though, he is just taking FOREVER to wean off the oxygen. He is doing great other wise.<br /><br /><div>On Thursday morning, JW will be going into surgery for a port-a-cath. This is a small surgery that will only last about an hour, but will be under general anesthesia and be put on a ventilator with all specialist at hand. This port will help with medical emergencies and blood draws, etc. so he will not have to be stuck a million times only to not get an IV. To check out some info click the following: <a href="http://en.wikipedia.org/wiki/Port_(medical">http://en.wikipedia.org/wiki/Port_(medical</a></div><br /><div>We are currently on 2 1/2 liters of oxygen we still need to come off of that and recover from the small surgery and we'll be able to come home! YAY! It's been so long, poor little boy. He does however, get a lot of attention from the staff in the PIMC unit. They fight over who gets to take him for the shift. </div><br /><div>Here are a few pics.. one includes JW's nurse Chris, who is wonderful and so special to our family. She was able to go with us one visit. Not leaving out other wonderful nurse out, Crystal is also awesome and very special to our family. but she has not been able to go with us yet. It's her turn next. Enough talk, here are the photos...</div><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiXEHTPQm-tINC12Gu-2Q-Oqie5fkFEYK-QlfuyR6nojm88sapCQUA3rRuwfJR9_56fW4shYrdJoQ-jPvB1YGcMomMoQBxux_o0Q-R5LDb-Pa5JH_5B7eBvtgl2stPZv5Z-CGxPo5zxmlDk/s1600-h/3-1+james+1.jpg"><img id="BLOGGER_PHOTO_ID_5444239631828856594" style="FLOAT: left; MARGIN: 0px 10px 10px 0px; WIDTH: 320px; CURSOR: hand; HEIGHT: 240px" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiXEHTPQm-tINC12Gu-2Q-Oqie5fkFEYK-QlfuyR6nojm88sapCQUA3rRuwfJR9_56fW4shYrdJoQ-jPvB1YGcMomMoQBxux_o0Q-R5LDb-Pa5JH_5B7eBvtgl2stPZv5Z-CGxPo5zxmlDk/s320/3-1+james+1.jpg" border="0" /></a></div><br /><div> </div><div> </div><div> </div><div> </div><div> </div><div> </div><div> </div><div> </div><div> </div><div> </div><div><br /> </div><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi43vZks-crvyi12dr7pREkrCgYQWfvRR-fMd2YegAq5JfVSBZnajN1c7dFm5nP1lgnwwtltlnVcXTHrPNR4jd4rbVRpmeVl9Rf9P26jMqawu-qh0kEuJEYciGh_5T6NCW6Tzr7XVibxOqX/s1600-h/3-1+james+3.jpg"><img id="BLOGGER_PHOTO_ID_5444240508403363730" style="FLOAT: left; MARGIN: 0px 10px 10px 0px; WIDTH: 320px; CURSOR: hand; HEIGHT: 240px" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi43vZks-crvyi12dr7pREkrCgYQWfvRR-fMd2YegAq5JfVSBZnajN1c7dFm5nP1lgnwwtltlnVcXTHrPNR4jd4rbVRpmeVl9Rf9P26jMqawu-qh0kEuJEYciGh_5T6NCW6Tzr7XVibxOqX/s320/3-1+james+3.jpg" border="0" /></a></div></div>Allison Taylorhttp://www.blogger.com/profile/02072497898940535120noreply@blogger.com0tag:blogger.com,1999:blog-316238964848636738.post-91902935604725947102010-02-24T19:26:00.000-08:002010-02-24T19:44:44.723-08:00The Longest StayHello to all again.<br /><br /><br />Just to update, JW is still in the hospital, today marks two weeks. Over the weekend he was starting to flair with his respiratory issues. He was on 2 lpm of oxygen but they had to increase to 4 then 6 lpm. He has been on 6 for the last few days and holding steadily. The xray showed some haziness that they believe to be the bacteria coming back that was supposed to be taken care of with the antibiotic. The bacteria is called pseudomonas, you can find some info at this website that might explain a little more. <a href="http://www.healthscout.com/ency/68/471/main.html">http://www.healthscout.com/ency/68/471/main.html</a><br /><br /><br />He is doing wonderful oftherwise, laughing, smiling, just a real joy for the nurses and child life staff. Here is a photo I took of him on Tuesday...<br />Sorry its a little blurry, took it with my phone.<br /><br /><img id="BLOGGER_PHOTO_ID_5442021417519066722" style="DISPLAY: block; MARGIN: 0px auto 10px; WIDTH: 240px; CURSOR: hand; HEIGHT: 320px; TEXT-ALIGN: center" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi0KJQn9rlVYY8eOHTW1-m4zlB21pmxigSrEeaKghyphenhyphen50puqOPNw1d8VKrSLGhOI_QnH1Ll_QTd_vGkq3VQrMe5dT5UxcgbMqpODIRdjowArlwbAxK8FAZjMrc5OZP0eAOvadKCHSkTr1bHX/s320/JW+02-23-2010.jpg" border="0" /><br /><p>He is getting so big, thank you everyone for your prayers, thoughts and encouragement. He is such a blessing to the world, especially his family. </p><p>Allie</p><p> </p><p>will update as we progress</p>Allison Taylorhttp://www.blogger.com/profile/02072497898940535120noreply@blogger.com1tag:blogger.com,1999:blog-316238964848636738.post-12350240324608596612010-02-19T20:52:00.000-08:002010-02-19T21:01:50.739-08:00Look at our blessing!<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjqh_aFGrw29SeeNuJqmzEfCR2IldSF0N7KiF-_9v_LJovk5CwDV2ju6TrDzdyakjRG2EcVC-FUQAncCYRkSRAoL5hyU2470StlT_7_b6Tl6h1RlXMOh2NbYKBg7J0FpS3X15hE3TZJppWI/s1600-h/100_0473+-+Copy.JPG"><img id="BLOGGER_PHOTO_ID_5440185927520394002" style="DISPLAY: block; MARGIN: 0px auto 10px; WIDTH: 240px; CURSOR: hand; HEIGHT: 320px; TEXT-ALIGN: center" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjqh_aFGrw29SeeNuJqmzEfCR2IldSF0N7KiF-_9v_LJovk5CwDV2ju6TrDzdyakjRG2EcVC-FUQAncCYRkSRAoL5hyU2470StlT_7_b6Tl6h1RlXMOh2NbYKBg7J0FpS3X15hE3TZJppWI/s320/100_0473+-+Copy.JPG" border="0" /></a><br /><div>So here are a few recent pics. We are in the hospital again, but should be coming home soon. Just wanted to post these, update tomorrow.</div><br /><div></div><br /><div></div><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgRKRIxsS43vdA1NzAkJwkWPVnNazmAm02pBTODyp8dMJrjCjAmrNU6sYlmV1fJwv7Erxx0PGFBSrflqwAPMB2kFWnceIyZybqKBwue4ZWrErWQ0UphOELBy9OQh7CTBNAuKXYwP2bZG2nJ/s1600-h/100_0469.JPG"><img id="BLOGGER_PHOTO_ID_5440184931073656498" style="DISPLAY: block; MARGIN: 0px auto 10px; WIDTH: 320px; CURSOR: hand; HEIGHT: 240px; TEXT-ALIGN: center" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgRKRIxsS43vdA1NzAkJwkWPVnNazmAm02pBTODyp8dMJrjCjAmrNU6sYlmV1fJwv7Erxx0PGFBSrflqwAPMB2kFWnceIyZybqKBwue4ZWrErWQ0UphOELBy9OQh7CTBNAuKXYwP2bZG2nJ/s320/100_0469.JPG" border="0" /></a><br /><br /><div></div></div>Allison Taylorhttp://www.blogger.com/profile/02072497898940535120noreply@blogger.com0tag:blogger.com,1999:blog-316238964848636738.post-34437897354805314942010-02-13T20:27:00.000-08:002010-02-13T20:58:05.428-08:00EMERGENCY! Call 911.I never in my life thought I would have to call 911 for anyone in my family much less one of my own children. But as life has it, the EMS staff definitely know who we are by name. Lately JW has been having trouble with choking on his secretions that he can't swallow when he gets really upset. We had this in Nov. Dec and now in Feb.<br />On wednesday, I think, ( I am not even sure what day it is today) JW had one of his episodes and starting to lose oxygen with my nurse Crystal while I was shopping for something for dinner at HEB with the older two kiddos. I was talking with her and Chriselda, my other nurse, and things were getting worse, so we had to call 911. He was doing good when they got there but we sent him on to San Antonio because we weren't sure what was going on. Apparently during the flight he stopped breathing and they had to intubate so when we arrived at the hospital he was much worse than I was thinking.<br />He is doing much better now they are soon looking to take him off the ventilator. Today he was awake but still kind of groggy but looking much better.<br />JW has been growing and doing so well at home, he is just such a joy in our lives, a joy that I, with the help of my nurses and family, work very hard to have. I just want to let my wonderful nurses/family, they are basically family now, that I appreciate everything they do to help me keep my child well. I saw a little something at the hospital gift shop today, buying something for JW for valentine's day, that said "Nurses are Angels on Earth" and that is so true.<br />Thank you to everyone for all of your thoughts and prayers sent our way, they are greatly appreciated. I just felt like blogging a little, I will return soon with an update on how our little guy is doing and a few more specifics of his condition. God Bless!Allison Taylorhttp://www.blogger.com/profile/02072497898940535120noreply@blogger.com1tag:blogger.com,1999:blog-316238964848636738.post-40439393851131880272009-12-06T08:07:00.000-08:002009-12-06T08:20:47.037-08:00Memory Lapse and Good NewsSo, I completely blanked and forgot to update the blog this past week! I have been on the phone with a few people and have given them the good news, which is probably why updating the blog slipped my mind. Sorry about that!<br /><br />The good news is that JW came home on Friday! He was down to a half liter of oxygen and was then off oxygen for a while the couple of days prior to his coming home. They kept him until Friday just to make sure everything was ok. We are all very relieved and I know Allie and Wacy are glad to have him back home and for things to be back to normal. <br /><br />We know that this good news is, in part, to all of you, our devoted prayer warriors! THANK YOU! Your prayers and support throughout the past few weeks has played a huge part in our family's hope and strength and JW's recovery. <br /><br />Please continue praying for JW....for his healing and development and God's plan and purpose for his life. Pray for his nurses and caretakers. Pray for JW's doctors, that they be blessed with wisdom. Pray for Allie and Wacy in the decisions they are making and will make for his care and for courage, strength, and comfort for them.<br /><br />I will try to get some new pictures of the not-so-little guy to post....as of last week he weighed 17 pounds! So, check back in the next few days.<br /><br />Again, thank you to everyone who is praying and for those of you (and you know who you are) who have sent words of encouragement via email/Facebook or made those phone calls to let us know you care...it means more to us than words can ever express. God bless each of you.<br /><br />~LindyAllison Taylorhttp://www.blogger.com/profile/02072497898940535120noreply@blogger.com0tag:blogger.com,1999:blog-316238964848636738.post-47524195846708591922009-11-27T06:37:00.000-08:002009-11-27T06:50:45.830-08:00So Much to be Thankful for...JW is still in the hospital, but improving. He did have a rough night a couple of nights ago in regards to his respiration, but he is doing better now. He is still not at an oxygen level that would allow him to come home, but we hope he will be soon. I hope to be able to report more in the next day or so.<br /><br />As Thanksgiving Day has come and gone, our family has so much to be thankful for. We are thankful for each other and the strength, hope, and faith that has resonated through and to and from each of us over the past year since JW's birth. It has been trying at times and we are blessed indeed to have one another. We are thankful for JW's life and how his life has touched each of ours in ways that can never be explained. We are thankful for Allie and Wacy and how they have gone through the tough times with grace and a maturity that is beyond their youthful years AND how they have still been the best of parents to Tristin and Mitchell through it all. We are thankful for Tristin and Mitchell too...how they both light up our worlds and bring such joy to our hearts. We are thankful for the love of God that has surrounded us and held us tight when we most needed it. We are thankful for the blessings of friends and extended family who continue to be so faithful and caring in lending a hand, praying, comforting, and much more. We are thankful for peace that comes only from God, Our Father, and how He has provided it when we needed it more than anything. And we are thankful for each of you, for standing by and showing your love for us and JW...may God bless you greatly, in the ways you need His blessing most. Thank you for following JW's story and praying with us.<br /><br />~LindyAllison Taylorhttp://www.blogger.com/profile/02072497898940535120noreply@blogger.com0tag:blogger.com,1999:blog-316238964848636738.post-55932843947787851942009-11-23T06:46:00.000-08:002009-11-23T06:58:10.673-08:00On the MendJW was taken off the ventilator yesterday! Praise God for that! Poor little fella was pretty hungry and sleepy after being off his milk (overnight, I think) and having an eventful day all around. They have to take him off milk prior to removing the tube and ventilator. Allie said he was so fussy and she knew he just wanted to eat and sleep...so, he is feeling more like his usual self again. JW had been on 1/4 liter (per minute) of oxygen prior to going into the hospital but he is now using 4 liters per minute. Before he can go home, he will need to get down to a more normal oxygen level. Overall, he has improved greatly in the past few days and will hopefully be home soon. Please keep checking the blog or our facebook pages for updates. Again, there are not words to thank everyone for your thoughts and prayers through this ordeal and over the past year. Please continue to keep JW, Allie, Wacy, Tristin, and Mitchell in your prayers. May God bless each of you for your faithfulness and selflessness. We have so much to be thankful for as this Thanksgiving holiday rolls around. Let us remember how blessed we are throughout this week and always!<br /><br />~LindyAllison Taylorhttp://www.blogger.com/profile/02072497898940535120noreply@blogger.com0tag:blogger.com,1999:blog-316238964848636738.post-46459972682236664072009-11-21T05:46:00.000-08:002009-11-21T05:51:18.070-08:00Improvment All AroundAs we near the Thanksgiving holiday, today we are thankful for continued good news. JW has improved more and the doctors are hoping to extubate him tomorrow (Sat.) and get him off the ventilator. He may have to have a higher level of oxygen for a while, but I'm not sure on that just yet. Also, Allie says he was more awake today and she actually got a smile out of him, which definitely means he is feeling better. I will report more later Sat. night or Sun. morning. Thank you again, for all the prayers, thoughts, and kind words you have sent JW's way. He is an amazing, resilient little guy and we are so thankful for the answered prayers of many when it come to him.Allison Taylorhttp://www.blogger.com/profile/02072497898940535120noreply@blogger.com0tag:blogger.com,1999:blog-316238964848636738.post-24359112347382611312009-11-19T21:01:00.000-08:002009-11-19T21:23:07.602-08:00Nov. 19 updateI just talked to Allie a couple of hours ago and here's the latest...JW's overall condition has improved since yesterday. His lungs are looking better and the ventilator was lowered, meaning he is able to do more on his own. All good stuff! He is still listed as stable, but he is still in PICU. His blood pressure is back to normal and they have started him on a chest physical therapy machine or CPT which uses rhythmic vibration or percussion applied to the chest wall to loosen secretions from the respiratory tract and/or force them from smaller airways into larger ones where they can be better dealt with. Allie said this made a huge difference in JW's respiration quality. Allie and Wacy are headed back again tomorrow, so I will update once I hear from them. Thank you, thank you, thank you to everyone who is so faithfully praying for JW and our family. It is because of each of you and God's grace that JW continues to improve and recover from a grave situation AND that our family manages to hold ourselves together in love and strength. Blessings to you all.<br /><br />One more thing, Allie forwarded a photo of JW taken today and after much debate, we have decided to put it on the blog...mainly so everyone can see 1) how big the little guy is now, since we haven't put up any pics in a while and 2)the reality of JW's current situation. If you are sensitive to things of a semi-graphic nature, please do not view the following photo, but I, personally, do think it is any worse than the ones shown in the earliest posts on this blog. We do realize some of you may be sensitive to such things, hence the following warning.<br /><br />-------------------------------------------------------------------------------------------------------<br /><br />WARNING: The following photo may be graphic in nature, please do not share this photo with your children or anyone who might be sensitive to its nature.<br />-------------------------------------------------------------------------------------------------------<br /><br /><br /><br /><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjgAu_W_OTxhMY7kunIJDsejajuk6LvRn6pFk90ybmq8x8I94pvqnfdwvEvnd4nwlx6zkiPrlncPql8f90p0PRzwh8NzkSnXXxirXU52m2ghqh8KYtgP7fgTkk_fB0ScaD_IfmcVwUHaL_L/s1600/100_0399.JPG"><img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 320px; height: 240px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjgAu_W_OTxhMY7kunIJDsejajuk6LvRn6pFk90ybmq8x8I94pvqnfdwvEvnd4nwlx6zkiPrlncPql8f90p0PRzwh8NzkSnXXxirXU52m2ghqh8KYtgP7fgTkk_fB0ScaD_IfmcVwUHaL_L/s320/100_0399.JPG" alt="" id="BLOGGER_PHOTO_ID_5406051422610237602" border="0" /></a>Allison Taylorhttp://www.blogger.com/profile/02072497898940535120noreply@blogger.com0tag:blogger.com,1999:blog-316238964848636738.post-65463642472064461392009-11-19T08:08:00.000-08:002009-11-19T08:23:36.342-08:00Nov. 18Please be praying for our little guy as he is back in the hospital as of yesterday. Early yesterday morning, Allie was alerted to JW's respiratory distress and within a short time he was air lifted to San Antonio. His left (not his right as previously reported) lung is collapsed; he is intubated and on a ventilator as his body is having difficulty supporting his respiratory needs. He was also having difficulty regulating his blood pressure, which is now being managed with the help of medication. Overall, he is stable, but still in the pediatric ICU. We believe his current condition was brought on, first, by an ear infection that caused other complications and caused him to have excess secretions that he aspirated on. Allie and Wacy are on their way back to SA today and we should have more news this afternoon or evening. Until then, please pray for JW's health, a speedy recovery, JW's doctors, and Allie and Wacy for strength. More to come as soon as I hear an update.<br /><br />~Lindy<br /><br />PS. An update on the last post regarding the geneticist's report. The dr. found nothing in all of the test results that would lead him to believe any of JW's health issues stem from a genetic source, but instead were likely caused by "birth injury", whether this occurred in the womb or during delivery will probably never be determined.<br /><br />Thank you to all who continue to pray for JW and our family. God and your prayers are the source of our strength and hope.Allison Taylorhttp://www.blogger.com/profile/02072497898940535120noreply@blogger.com2tag:blogger.com,1999:blog-316238964848636738.post-6499079203611938982009-09-21T12:11:00.000-07:002009-09-21T12:28:17.939-07:00Update TimeAllie is, as I type, on her way with mom and JW to the geneticist to get the full report on all the findings of the genetic testing done to see if, maybe, some of JW's issues are genetic. We are doubtful that this is the case, but please lift them up in your prayers that maybe we will have some answers and that they will be blessed with safe travel today. We will post an update with the news they receive.<br /><br />Also, JW has an appointment on October 8th with the orthopedic doctor to discuss options and where JW stands with his hips and scoliosis. Hopefully, at that time, JW will also be tested to see whether or not he is a candidate for the titanium rib procedure which will help with the scoliosis. Please be praying that he is indeed a candidate for the procedure and that the doctors can finally begin working to alleviate some of his health issues. By alleviating the scoliosis, JW may be able to breathe better as the titanium rib should take pressure off his lungs by helping him to be more upright, stretching out his chest and abdomen. Each day, as JW grows, his lungs are being kept in a cramped position and are not being allowed to grow and change with the rest of his body....thus becoming deformed. This is a MAJOR issue for him, so we would greatly appreciate your prayers for JW and his doctors. <br /><br />Now for his latest "first"...JW has his first tooth! One of the nurses noticed it about a week or so ago and I wish I had pictures to post, because I haven't seen it myself. I will get some from Allie to post or have her post some soon. Just another praise for our little man who is growing bigger and stronger every day.<br /><br />JW's lungs are also getting stronger...he is now being taken off oxygen for most of the day and while off, his oxygen saturation rate is remaining at 100% or in the high 90's! This is very good news, considering the scoliosis keeps his lungs very cramped and doesn't allow him to expand his chest fully.<br /><br />So, all in all, good news all around. JW also managed to stay healthy while Allie, Tristin, and Mitchell ALL had a nasty stomach virus. Thank you Lord! Your prayers are working! Please remember JW and his many needs, but also remember to thank God for all the good stuff!<br /><br />~LindyAllison Taylorhttp://www.blogger.com/profile/02072497898940535120noreply@blogger.com1tag:blogger.com,1999:blog-316238964848636738.post-4867758997523575082009-09-16T10:22:00.000-07:002009-09-16T10:48:54.739-07:00Who's the Birthday Boy?!?<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhGGVUs-DkZG04mvxWrcMYqhuCFk-VYv4q7FAg-hXufBRsMNonplCzs_AlTDbaLIRL-RLXxV78EK4p07z8KUGbkoE_6ukNYZLKS2QgwI_Cmp6eyTvkuilTMhGKf2Evsw7vG-utXt3thyphenhyphenkgp/s1600-h/SL381515.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 240px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhGGVUs-DkZG04mvxWrcMYqhuCFk-VYv4q7FAg-hXufBRsMNonplCzs_AlTDbaLIRL-RLXxV78EK4p07z8KUGbkoE_6ukNYZLKS2QgwI_Cmp6eyTvkuilTMhGKf2Evsw7vG-utXt3thyphenhyphenkgp/s320/SL381515.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5382119446896296098" /></a><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhOfE8PMlOHXDqJSLdnuufIJJbBA8Z760g5yAuuFUg7uj4jKK5tBUHnd6xCK00COWOHKV7xKGSDO_VOMddoHz0nOD-NC-F1f2RdVP37od5rvTE9o3CRXZLKaftEzS1OEy2I-RpMAlN6vRnz/s1600-h/SL383322.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 240px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhOfE8PMlOHXDqJSLdnuufIJJbBA8Z760g5yAuuFUg7uj4jKK5tBUHnd6xCK00COWOHKV7xKGSDO_VOMddoHz0nOD-NC-F1f2RdVP37od5rvTE9o3CRXZLKaftEzS1OEy2I-RpMAlN6vRnz/s320/SL383322.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5382119439794262994" /></a><br />Yep, today is JW's FIRST birthday. I can't believe it has been one year! He has changed and grown and progressed so much since the day of his birth. Who could have imagined how this little boy could impact and change the lives of our family forever? I am so proud of JW for being such a fighter and I am so thankful to God for him, for my sister, and for her family...for their strength, courage, and faith through it all. May God continue to bless JW and may we celebrate this day with thanksgiving and love for years to come! HAPPY BIRTHDAY JW!! Birthday wishes can be posted here, on Allie's Facebook Page, or emailed to her at: allie_78@hotmail.com.<br /><br />PS. I looked up JW's birthverse (www.birthverse.com) and his is Genesis 9:16..."Whenever the rainbow appears in the clouds, I will see it and remember the everlasting convenant between God and all living creatures of every kind on the earth." <br /><br />I couldn't resist so, Allison's is Isaiah 9:6...For to us a child is born, to us a son is given, and the government will be on his shoulders. And he will be called Wonderful Counselor, Mighty God, Everlasting Father, Prince of Peace. I thought this was interesting...as Jesus was a "special son"...so is JW. And Allie was hand-chosen by God to be his mother, just as God chose Mary to give Jesus life. His plan is so perfect, isn't it?!?<br /><br />Enjoy this day, celebrate with us and give thanks and praise to God.<br /><br />~LindyAllison Taylorhttp://www.blogger.com/profile/02072497898940535120noreply@blogger.com1tag:blogger.com,1999:blog-316238964848636738.post-2590018779371471222009-09-14T20:04:00.001-07:002009-09-14T22:26:25.133-07:00There Will Be a Day<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgoNhgy3-hQgqyhVbNbNSh_TmdtidbbO-iA2yMyhnR_xJXehtTFppZos-nBasgxoiI6jeW0OMI_9rCc5XOziAAyjNTfbLbLDihvFhwdkIvZ3-ORwjq6asb140D_vlLsO_-vrshE3lkX7uXq/s1600-h/SL383368.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 240px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgoNhgy3-hQgqyhVbNbNSh_TmdtidbbO-iA2yMyhnR_xJXehtTFppZos-nBasgxoiI6jeW0OMI_9rCc5XOziAAyjNTfbLbLDihvFhwdkIvZ3-ORwjq6asb140D_vlLsO_-vrshE3lkX7uXq/s320/SL383368.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5381553088649148770" /></a><br />As JW's 1st birthday approaches, I can't help but think back over the past year and become overwhelmed with feelings of thankfulness, amazement, love, sorrow, joy, relief, fear, wonder, and too many others to list. I am so thankful for little JW, as, I know, is the rest of my family. I am amazed at God's greatness, His love for us, and our love for each other. I am saddened that the past year's events happened to my sister's family, our family, my nephew...you never believe it will happen to anyone you know until it does. I am overjoyed that JW is doing so well, that God had a plan when He chose Allie and Wacy as JW's parents, and that I am blessed to have witnessed a miracle through JW's life. I relish the present and every step JW takes in progress. I am relieved to know God has purposed each of us into existence, JW included, and He is in control of everything! I stop myself each time I start to ask why. Why did God allow this to happen to JW, my sister, her family, our family? We may not know the answers to these questions and thousands of others until the day we meet our creator, but does it even really matter? I don't think so. We must rest in knowing that the day will come....the day when JW will be healed, completely, when we will understand it all. Whether it happens in this lifetime or the next is not up to me or anyone else on this earth. I look forward to that day. I pray that he will be healed now, tomorrow, effective immediately, ASAP...but if God chooses to wait until the next lifetime I will celebrate then too. Until then, I will keep pressing forward, praying, hoping, wishing, but looking forward, trying not to question this life, but looking to the day when there will be no more pain or suffering and for certain, JW, and the rest of us will be healed and made perfect! In other words I have hope! One of my favorite songs ("There Will Be A Day" by Jeremy Camp) addresses just this...I pray its words can help put things into perspective for you as they have for me. Please take a moment to listen to the song below.<br /><br /><object width="425" height="344"><param name="movie" value="http://www.youtube.com/v/klvw4Dt6m_M&hl=en&fs=1&"></param><param name="allowFullScreen" value="true"></param><param name="allowscriptaccess" value="always"></param><embed src="http://www.youtube.com/v/klvw4Dt6m_M&hl=en&fs=1&" type="application/x-shockwave-flash" allowscriptaccess="always" allowfullscreen="true" width="425" height="344"></embed></object><br /><br />I will celebrate the 16th of this month with my family, though not in person, I will be celebrating in heart and spirit. I will celebrate the life of our miracle, JW. I ask that each of you please celebrate with us. We give thanks for his life, for each of you, our faithful prayer warriors, family, and friends. I would also like to invite each of you to commemorate this special date by sending a little something JW's/Allie's way....a note of love or inspration, a birthday card, an email....just something to express your thoughts, prayers, hopes, wishes, etc. Email me at raynese01@hotmail.com for Allie's address or email. Allie has informed me she will be blogging soon with a real update, the official birthday blog, and some exciting news about JW. Please feel free to leave your comments and best wishes for JW on his 1st birthday. Thank you again for your kind words, thoughts, and prayers over the past year...keep 'em coming! Until next time...<br /><br />JW's Aunt LindyAllison Taylorhttp://www.blogger.com/profile/02072497898940535120noreply@blogger.com2tag:blogger.com,1999:blog-316238964848636738.post-73381938644365173822009-07-20T10:29:00.000-07:002009-07-20T10:40:30.129-07:00Are you mad at me?? ahh.. AN UPDATE!<div>So sorry, it has been a long, long time since I last updated, I am a terrible blogger, Lindy is definitely better at it than I am. </div><br /><div>JW had a hospital visit in May when he was admitted for pneumonia and was on a high flow oxygen for a week. We haven't been back since, except for follow up appointments.</div><br /><div>JW has scoliosis, which he will most likely need surgery. We will find out about that in August, if he will be able to handle the extensive surgery and replacements every six months. </div><br /><div>We also have two nurses now, instead of just one, to cover 7 days a week, 10 hours a day. They are wonderful and work very well with JW. </div><br /><div>Here is a farely recent pic of him with the occupational ther<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi69IKcz1Uf7mcSjWahydaZNjri9ZjPU37BJolvWUdzEfOoivNHmdAm5T6QZY7XbmAOnowWgcqJo0wfAK_WFDYF33AtisjWk8zN7ljp5aVIUXzG-X0nKo5MTv-fM5eNUlOsul9sINAu_WzQ/s1600-h/JW+sitting+with+ot.jpg"><img id="BLOGGER_PHOTO_ID_5360598062805703010" style="FLOAT: left; MARGIN: 0px 10px 10px 0px; WIDTH: 228px; CURSOR: hand; HEIGHT: 320px" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi69IKcz1Uf7mcSjWahydaZNjri9ZjPU37BJolvWUdzEfOoivNHmdAm5T6QZY7XbmAOnowWgcqJo0wfAK_WFDYF33AtisjWk8zN7ljp5aVIUXzG-X0nKo5MTv-fM5eNUlOsul9sINAu_WzQ/s320/JW+sitting+with+ot.jpg" border="0" /></a>apist sitting him up..</div><div>He is now 10 months old and improving a little each day, he even giggles a little, it's the cutest thing.</div><div>Thank you for your thoughts and prayers, God is listening.</div><div>Allie</div>Allison Taylorhttp://www.blogger.com/profile/02072497898940535120noreply@blogger.com3tag:blogger.com,1999:blog-316238964848636738.post-72722662216953270312009-05-05T16:00:00.000-07:002009-05-05T16:21:05.223-07:00One more step with God's help....If you haven't heard already, JW is officially in a regular car seat!! What a huge relief. Thanks to you who have prayed for him and especially for the car seat test.<br /><br /><br /><div><div>We went to San Antonio on April 21 for the car seat study and to discuss botox injections.<br /></div><div>JW passed the car seat test with flying colors!! He did absolutely wonderful, no problems what so ever. This was a huge feat because if he didn't pass, we would have to travel with him in an ambulance, a big inconvenience.<br /></div><div>Here is a photo of the big boy in his car seat...<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEinHkZihUIuVlUiIyYjCwhIBlejLQziJBh9hiv_meCgEQwiPc1SfAKpSTAcyw10TFpApOPHrLjwmkXA-RnKC3nUhRjpPo_yRIvtbLkz_LOnhSMe2ZCU3SAG9SjhWD1jHm35HFXLI0eSZB4l/s1600-h/DSCN0316.JPG"><img id="BLOGGER_PHOTO_ID_5332480707779535202" style="FLOAT: left; MARGIN: 0px 10px 10px 0px; WIDTH: 240px; CURSOR: hand; HEIGHT: 320px" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEinHkZihUIuVlUiIyYjCwhIBlejLQziJBh9hiv_meCgEQwiPc1SfAKpSTAcyw10TFpApOPHrLjwmkXA-RnKC3nUhRjpPo_yRIvtbLkz_LOnhSMe2ZCU3SAG9SjhWD1jHm35HFXLI0eSZB4l/s320/DSCN0316.JPG" border="0" /></a></div></div><br /><br /><div></div><br /><br /><div></div><div>JW officially weighed 14 lbs, 1 oz. at the doctor on Monday.</div><br /><br /><div>Unfortunately, we had to take him in to see our family doctor in Uvalde. He had been running a fever since last Wednesday, and was on two different antibiotics that weren't helping. We were afraid he had another bad case of pneumonia or the flu and another possibilty. BUT... all good news, well mostly. He had none of those, just a virus that had to run it's course. Today he is feeling much better. YEAH!! no hospital. We were so relieved when we walked out of the doctor's office. </div><br /><br /><div></div><br /><br /><div>Today, we also had an occupational therapy consultation. The therapist will be coming twice a month along with physical therapy, so he will be getting something from the professionals once every week.<br /></div><div>I just wanted to update on the car seat study and give you an updated photo.</div><br /><div>Just for giggles I am adding photos of the other two kids, Tristin and Mitchell.</div><br /><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgIxM3ifXfKKIsvVF_9wpvVJdb5288zFD_B14qZPYQj4eh71SKxkreLxOq-H2AkFUtEys7GpbRKCnWTGmljvuCxWdXrUGii2yOY_DL93WM1wEL7145nBp5a1xF6hFikJMcu81X418yewVxB/s1600-h/DSCN0320.JPG"><img id="BLOGGER_PHOTO_ID_5332482623936615186" style="FLOAT: left; MARGIN: 0px 10px 10px 0px; WIDTH: 383px; CURSOR: hand; HEIGHT: 318px" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgIxM3ifXfKKIsvVF_9wpvVJdb5288zFD_B14qZPYQj4eh71SKxkreLxOq-H2AkFUtEys7GpbRKCnWTGmljvuCxWdXrUGii2yOY_DL93WM1wEL7145nBp5a1xF6hFikJMcu81X418yewVxB/s320/DSCN0320.JPG" border="0" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZEyIGCVpg4JIv0qEKS8-nviCiAJc6vHcw-kY0mm_JGieHRt0tCZrZQGksgiD7dEZj2Kbae9LAtI6Xuopae8KBkrQP4D_jBUb7pVkSJxTLVXmY6_JFyNAUg9liN_mUxpqtKOJlTmneH-72/s1600-h/DSCN0322.JPG"><img id="BLOGGER_PHOTO_ID_5332483145402329458" style="FLOAT: left; MARGIN: 0px 10px 10px 0px; WIDTH: 240px; CURSOR: hand; HEIGHT: 320px" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZEyIGCVpg4JIv0qEKS8-nviCiAJc6vHcw-kY0mm_JGieHRt0tCZrZQGksgiD7dEZj2Kbae9LAtI6Xuopae8KBkrQP4D_jBUb7pVkSJxTLVXmY6_JFyNAUg9liN_mUxpqtKOJlTmneH-72/s320/DSCN0322.JPG" border="0" /></a></div><div> </div><div> </div><div> </div><div> </div><div> </div><div> </div><div> </div><div> </div><div> </div><div> </div><div> </div><div> </div><div> </div><div> </div><div> </div><div> </div><div> </div><div> </div><div> </div><div>Tristin relaxing. Mitchell trying to sneak candy.</div>Allison Taylorhttp://www.blogger.com/profile/02072497898940535120noreply@blogger.com3tag:blogger.com,1999:blog-316238964848636738.post-72387090129043910832009-04-20T18:47:00.000-07:002009-04-20T19:14:57.215-07:00Appointment day tomorrow...<div><div>Tomorrow we have a big day ahead of us. We will be doing a second car seat study to try to get the growing boy into a regular car seat. He is currently in what is called a car bed, just a flat car seat that rides sideways in the vehicle. Please pray that the Lord will give JW the strength to be in the regular car seat, otherwise, it will be an ambulance ride anytime we have to go anywhere. He will have to prove to the doctors that he can handle being at the 45 degree angle for 1 1/2 hours(the time it takes to get to S.A. from Uvalde).</div><br /><br /><div>We also have an appointment at the feeding clinic, which will once again assess his ability to handle his extra secretions and swallow. We are praying hard for this one also! </div><br /><br /><div>The last two weeks, he has been doing awesome!! Not having to suction as often. </div><br /><br /><div>We also see the neurologist for his botox treatment tomorrow, I have very mixed feelings about this procedure. It has done wonders for his tight muscle tone, but we still aren't sure if it caused his respiratory problems shortly after the last injections. I pray God will give me the wisdom to decide what to do in the best interest of JW. </div><br /><br /><div></div><br /><br /><div>Well, as most of you know, WE HAVE MOVED! Finally, it was a chore getting JW moved. Compared to his stuff, the rest of the house was a breeze. The problem with his stuff, is that you had to know exactly where everything was, but with the help of my mom and dad and our nurse, Albert, we got it done. </div><br /><br /><div>We are happily settling into our beautiful home God has blessed us with. </div><br /><br /><div>Tristin has adjusted to changing schools near the end of the year very well. She loves it. I am so glad things went smoothly with that. </div><br /><br /><div>I am adjusting to being a full time mom at home! Ahhhh! Just kidding, I actually have more time to keep the house clean, wash clothes, all of that good stuff that we love doing. Not to mention more time to spend with the kids. </div><br /><br /><div>Occassionally, I have to call my adopted sister Leigh, or make a trip to Brackett to chat it up. I don't get very much socializing in Uvalde yet. </div><br /><br /><div>Anyhow, we love where we are at and love being a family again. </div><br /><br /><div>Thanks to my parents and my sis Lindy to all they have done to help us during the most hectic time in our lives. love you guys!</div><br /><br /><div></div><br /><br /><div>Here are some cute pics of JW, now 7 months old!! oh! I almost forgot, We have been home now for ..... I am starting to lose track it has been so long... I think 7 weeks going on 8. Hooray! Praise the Lord. </div><br /><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhXQ0H2pdpVZd_2jZZhZB9w_3JzbE2tU89lcSM2jMDnIL16UsNbw02DhEbQ_VcqlSGLbSwMpHxbrnvkqeoeCYGkj4Zvp7sVCTcGY0Ru2uKkeiqz5SB-qpjeGW_UpxRB5_laWW42DgdcIqtd/s1600-h/DSCN0315.JPG"><img id="BLOGGER_PHOTO_ID_5326961114245302290" style="FLOAT: left; MARGIN: 0px 10px 10px 0px; WIDTH: 320px; CURSOR: hand; HEIGHT: 240px" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhXQ0H2pdpVZd_2jZZhZB9w_3JzbE2tU89lcSM2jMDnIL16UsNbw02DhEbQ_VcqlSGLbSwMpHxbrnvkqeoeCYGkj4Zvp7sVCTcGY0Ru2uKkeiqz5SB-qpjeGW_UpxRB5_laWW42DgdcIqtd/s320/DSCN0315.JPG" border="0" /></a></div><br /><div></div><br /><div>Thank you for your prayers for our little boy, they are certainly working on this little miracle. We see improvements every day as he grows stronger with love and strength God and his family gives to him. </div><div> </div><div> </div><div>- Allie</div></div>Allison Taylorhttp://www.blogger.com/profile/02072497898940535120noreply@blogger.com1tag:blogger.com,1999:blog-316238964848636738.post-30357582847244375662009-04-02T17:01:00.000-07:002009-04-02T17:16:02.230-07:00Say Cheese for the Camera!<div>We have made it 4 weeks without any emergency trips of any kind! Praise the Lord!!!</div><br /><div>JW is weighing over 11 pounds and has been doing well on a small percentage of oxygen. We had to bump his oxygen up some for a couple of weeks to maintain his saturation level above 93 percent. </div><br /><div></div><br /><div>We had an appointment with the eye clinic at santa rosa... good news... JW can see better than me! That was such a blessing. </div><br /><div>He is near sighted, just like his mommy and his sight in his left eye is minus 3 and minus 4 in the right eye. He will need to have corrective lenses in the future. </div><br /><div></div><br /><div>We also had our last Synagis shot which helps protect him from RSV, a virus that could be deadly should he catch it. It has such a horrible effect on baby's respiratory system and with his not having a strong system anyway, it wouldn't be good. </div><br /><div>Thankfully we have been virus free.</div><br /><div></div><br /><div>On April 9th we will have our follow up appointment with the ortho doctor about his dislocated hips and have some answers to all of our questions in that subject. We will also have an audiology appointment to see how well he hears. We definitely know he hears loud noises. He wakes up from a sound sleep even when I walk into his room talking on the phone. Please say a prayer for those appointments, pray that we have all good news concerning these two issues. </div><br /><div></div><br /><div>Finally, I have a beautiful photo for you of this cute little boy smiling!!</div><br /><div></div><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiOwJ-emFRgpXNp9gG1AhoZ5JhkDROYNkR1-MuZkGoA3xBU6GCHI2h1EuSU11jKtEk-N3jstOAewZv1mUKV5q1pxo5JTsEFuobYyhoJLsJ3WA_c-PjZvh4o1zIO1NRYwya_furNxtUXAXjB/s1600-h/JW+smiling.jpg"><img id="BLOGGER_PHOTO_ID_5320251327007069986" style="FLOAT: left; MARGIN: 0px 10px 10px 0px; WIDTH: 240px; CURSOR: hand; HEIGHT: 320px" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiOwJ-emFRgpXNp9gG1AhoZ5JhkDROYNkR1-MuZkGoA3xBU6GCHI2h1EuSU11jKtEk-N3jstOAewZv1mUKV5q1pxo5JTsEFuobYyhoJLsJ3WA_c-PjZvh4o1zIO1NRYwya_furNxtUXAXjB/s320/JW+smiling.jpg" border="0" /></a></div><div>Thank you for your thoughts and prayers and for your support and strength you have given our family. </div><div>I know I repeat myself on that one, but we are so appreciative of everything everyone has done that I feel I need to say it. </div><div>Please continue to pray for this precious little boy and may God continue to heal him from his rough entry into this world. </div><div>We have come a long way on God's road, it has been bumpy here and there but thankfully it is smoothing out for now.</div><div> </div><div>Love and Faith,</div><div>Allie</div>Allison Taylorhttp://www.blogger.com/profile/02072497898940535120noreply@blogger.com3