-JW's Aunt Lindy
He loves his toy!
Watching Chris blow a bubble
Wednesday, August 4, 2010
As I Type...
Right this moment, Allie and nurse Chris are waiting at the hospital to bring JW home!! Thank you to everyone who continues to be so faithful in lifting up our little man to the Lord for healing. Allie and Wacy still may be facing some big decisions regarding his care in the coming weeks, so please, please, please be praying for them. They need discernment, guidance, and absolute clarity from the Lord. They also need peace to rest assured the decision(s) they make are in line with God's will. Also, a big thank you to everyone who sent emails, posted FB messages, and left comments on the blog. Your kind and encouraging words mean so much! We are so thankful to have each of you in our lives and even more thankful that you are praying for JW and the family. We love you all and are so grateful for the love you return to us! And now for the bonus...I snapped a few cute smiley photos of JW from my early summer trip to TX and thought it was about time for me to share them!
-JW's Aunt Lindy
He loves his toy!
Watching Chris blow a bubble
-JW's Aunt Lindy
He loves his toy!Watching Chris blow a bubble
Thursday, July 29, 2010
Wow, March, April, May, June and July, plenty of hospital time for this cute little boy. Thank you to everyone who has kept him in their thought and prayers, we all needed a little lifting up to the Lord.
So, JW, aka, the cutest little boy ever, is currently in the hospital again!!, as many of you may know. He has had trouble with his respiratory system since November, whether it be a mucus plug or just a small cold, he has been through the ringer, poked and proded over and over again. But he still remains his happy little self, just smiling and giggling at all who love him and are around him. I think he has been the only one since September 16, 2008 that has kept on smiling and kept everyone else smiling. I am posting a picture of him taken Wednesday and I just ask for your continued thoughts and prayers as we are having to make some very difficult decisions over the next week concerning his care and managing his health in the way God has guided us to. We are at a fork in the road, where we will have to choose a little different plan of care for him because of his continued illnesses and extended stays in the ICU. Once we know more, I will post more detailed information on these issues, until then, I am just requesting some special prayers for guidance for my family and healing for JW.
So, JW, aka, the cutest little boy ever, is currently in the hospital again!!, as many of you may know. He has had trouble with his respiratory system since November, whether it be a mucus plug or just a small cold, he has been through the ringer, poked and proded over and over again. But he still remains his happy little self, just smiling and giggling at all who love him and are around him. I think he has been the only one since September 16, 2008 that has kept on smiling and kept everyone else smiling. I am posting a picture of him taken Wednesday and I just ask for your continued thoughts and prayers as we are having to make some very difficult decisions over the next week concerning his care and managing his health in the way God has guided us to. We are at a fork in the road, where we will have to choose a little different plan of care for him because of his continued illnesses and extended stays in the ICU. Once we know more, I will post more detailed information on these issues, until then, I am just requesting some special prayers for guidance for my family and healing for JW.
Tuesday, March 2, 2010
Hey guys! Wow, the last title on the blog continues to be true. We are going on four weeks in the hospital!! ahhh. Nothing serious though, he is just taking FOREVER to wean off the oxygen. He is doing great other wise.On Thursday morning, JW will be going into surgery for a port-a-cath. This is a small surgery that will only last about an hour, but will be under general anesthesia and be put on a ventilator with all specialist at hand. This port will help with medical emergencies and blood draws, etc. so he will not have to be stuck a million times only to not get an IV. To check out some info click the following: http://en.wikipedia.org/wiki/Port_(medical
We are currently on 2 1/2 liters of oxygen we still need to come off of that and recover from the small surgery and we'll be able to come home! YAY! It's been so long, poor little boy. He does however, get a lot of attention from the staff in the PIMC unit. They fight over who gets to take him for the shift.
Here are a few pics.. one includes JW's nurse Chris, who is wonderful and so special to our family. She was able to go with us one visit. Not leaving out other wonderful nurse out, Crystal is also awesome and very special to our family. but she has not been able to go with us yet. It's her turn next. Enough talk, here are the photos...
Wednesday, February 24, 2010
The Longest Stay
Hello to all again.
Just to update, JW is still in the hospital, today marks two weeks. Over the weekend he was starting to flair with his respiratory issues. He was on 2 lpm of oxygen but they had to increase to 4 then 6 lpm. He has been on 6 for the last few days and holding steadily. The xray showed some haziness that they believe to be the bacteria coming back that was supposed to be taken care of with the antibiotic. The bacteria is called pseudomonas, you can find some info at this website that might explain a little more. http://www.healthscout.com/ency/68/471/main.html
He is doing wonderful oftherwise, laughing, smiling, just a real joy for the nurses and child life staff. Here is a photo I took of him on Tuesday...
Sorry its a little blurry, took it with my phone.
Just to update, JW is still in the hospital, today marks two weeks. Over the weekend he was starting to flair with his respiratory issues. He was on 2 lpm of oxygen but they had to increase to 4 then 6 lpm. He has been on 6 for the last few days and holding steadily. The xray showed some haziness that they believe to be the bacteria coming back that was supposed to be taken care of with the antibiotic. The bacteria is called pseudomonas, you can find some info at this website that might explain a little more. http://www.healthscout.com/ency/68/471/main.html
He is doing wonderful oftherwise, laughing, smiling, just a real joy for the nurses and child life staff. Here is a photo I took of him on Tuesday...
Sorry its a little blurry, took it with my phone.
He is getting so big, thank you everyone for your prayers, thoughts and encouragement. He is such a blessing to the world, especially his family.
Allie
will update as we progress
Friday, February 19, 2010
Look at our blessing!
So here are a few recent pics. We are in the hospital again, but should be coming home soon. Just wanted to post these, update tomorrow.
Saturday, February 13, 2010
EMERGENCY! Call 911.
I never in my life thought I would have to call 911 for anyone in my family much less one of my own children. But as life has it, the EMS staff definitely know who we are by name. Lately JW has been having trouble with choking on his secretions that he can't swallow when he gets really upset. We had this in Nov. Dec and now in Feb.
On wednesday, I think, ( I am not even sure what day it is today) JW had one of his episodes and starting to lose oxygen with my nurse Crystal while I was shopping for something for dinner at HEB with the older two kiddos. I was talking with her and Chriselda, my other nurse, and things were getting worse, so we had to call 911. He was doing good when they got there but we sent him on to San Antonio because we weren't sure what was going on. Apparently during the flight he stopped breathing and they had to intubate so when we arrived at the hospital he was much worse than I was thinking.
He is doing much better now they are soon looking to take him off the ventilator. Today he was awake but still kind of groggy but looking much better.
JW has been growing and doing so well at home, he is just such a joy in our lives, a joy that I, with the help of my nurses and family, work very hard to have. I just want to let my wonderful nurses/family, they are basically family now, that I appreciate everything they do to help me keep my child well. I saw a little something at the hospital gift shop today, buying something for JW for valentine's day, that said "Nurses are Angels on Earth" and that is so true.
Thank you to everyone for all of your thoughts and prayers sent our way, they are greatly appreciated. I just felt like blogging a little, I will return soon with an update on how our little guy is doing and a few more specifics of his condition. God Bless!
On wednesday, I think, ( I am not even sure what day it is today) JW had one of his episodes and starting to lose oxygen with my nurse Crystal while I was shopping for something for dinner at HEB with the older two kiddos. I was talking with her and Chriselda, my other nurse, and things were getting worse, so we had to call 911. He was doing good when they got there but we sent him on to San Antonio because we weren't sure what was going on. Apparently during the flight he stopped breathing and they had to intubate so when we arrived at the hospital he was much worse than I was thinking.
He is doing much better now they are soon looking to take him off the ventilator. Today he was awake but still kind of groggy but looking much better.
JW has been growing and doing so well at home, he is just such a joy in our lives, a joy that I, with the help of my nurses and family, work very hard to have. I just want to let my wonderful nurses/family, they are basically family now, that I appreciate everything they do to help me keep my child well. I saw a little something at the hospital gift shop today, buying something for JW for valentine's day, that said "Nurses are Angels on Earth" and that is so true.
Thank you to everyone for all of your thoughts and prayers sent our way, they are greatly appreciated. I just felt like blogging a little, I will return soon with an update on how our little guy is doing and a few more specifics of his condition. God Bless!
Sunday, December 6, 2009
Memory Lapse and Good News
So, I completely blanked and forgot to update the blog this past week! I have been on the phone with a few people and have given them the good news, which is probably why updating the blog slipped my mind. Sorry about that!
The good news is that JW came home on Friday! He was down to a half liter of oxygen and was then off oxygen for a while the couple of days prior to his coming home. They kept him until Friday just to make sure everything was ok. We are all very relieved and I know Allie and Wacy are glad to have him back home and for things to be back to normal.
We know that this good news is, in part, to all of you, our devoted prayer warriors! THANK YOU! Your prayers and support throughout the past few weeks has played a huge part in our family's hope and strength and JW's recovery.
Please continue praying for JW....for his healing and development and God's plan and purpose for his life. Pray for his nurses and caretakers. Pray for JW's doctors, that they be blessed with wisdom. Pray for Allie and Wacy in the decisions they are making and will make for his care and for courage, strength, and comfort for them.
I will try to get some new pictures of the not-so-little guy to post....as of last week he weighed 17 pounds! So, check back in the next few days.
Again, thank you to everyone who is praying and for those of you (and you know who you are) who have sent words of encouragement via email/Facebook or made those phone calls to let us know you care...it means more to us than words can ever express. God bless each of you.
~Lindy
The good news is that JW came home on Friday! He was down to a half liter of oxygen and was then off oxygen for a while the couple of days prior to his coming home. They kept him until Friday just to make sure everything was ok. We are all very relieved and I know Allie and Wacy are glad to have him back home and for things to be back to normal.
We know that this good news is, in part, to all of you, our devoted prayer warriors! THANK YOU! Your prayers and support throughout the past few weeks has played a huge part in our family's hope and strength and JW's recovery.
Please continue praying for JW....for his healing and development and God's plan and purpose for his life. Pray for his nurses and caretakers. Pray for JW's doctors, that they be blessed with wisdom. Pray for Allie and Wacy in the decisions they are making and will make for his care and for courage, strength, and comfort for them.
I will try to get some new pictures of the not-so-little guy to post....as of last week he weighed 17 pounds! So, check back in the next few days.
Again, thank you to everyone who is praying and for those of you (and you know who you are) who have sent words of encouragement via email/Facebook or made those phone calls to let us know you care...it means more to us than words can ever express. God bless each of you.
~Lindy
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